double chin

Today was a fairly uneventful day.  They decided to move Kaden to continuous feeds meaning he gets the same amount of food, it’s just given continuously over 24 hours so as to never overload his tummy.  They also started him on Reglan to try to get his reflux under control.  His A’s and B’s have gotten better, but he was still having some desats at the end of every feeding…poor little guy!  Miss Karsyn is still hanging in there.  Her head continues to grown in size and after consulting the neurologist they decided to wait and see what the brain scan shows next monday, continue to do spinal taps and see what we get.  They did a tap today and only got 2 cc’s.  Which I guess is 2 cc’s less that what was in there, but still not a significant amount.  I grabbed a few cute pictures today.  They both weigh 2 lbs 13 oz!  quite the little porkers!   As I was about to hold Kaden I looked at him laying in the bed and he seriously has a roll under his chin and on his arms!!  I know he doesn’t even weigh 3 lbs but he definitely looks bigger to me!!!

My little piggy!!

Little sister sporting the hat Granny made for her!!!!  Thanks Granny!

And just some fun ones of big brother!!!  Every time we go to target he grabs a batting helmet and walks around the store with it on.  I decided today that he needed one!!!  Look at my little slugger!!

headed to the plate!

 

The other day we were waiting on daddy to get home and I walk in the front room to find this!  A little boy very anxious to see his daddy!

from the other side!!!  What a fun greeting for daddy!!!

The judge roy scream

Yes, this is an odd name for a blog post.  But if you’re from the Dallas area and have ever been to Six Flags, you know this is the name of the oldest roller coaster in the park (maybe even the oldest in Texas…not sure).  Why would i choose this for my post you might ask?  Because I sooo wish the roller coaster ride I am on was named Judge Roy Scream.  I wish I could go back to my high school and junior high days and ride roller coasters for entertainment purposes as opposed to the emotional torture my current ride is providing.  Okay I’m done with my ranting I promise!!!  We were warned numerous times about this ride we’re on, but nothing truly prepares you!

Mr. Kaden is doing well.  As of today he is on full feeds.  Right now this means he is up to 22 cc’s every 3 hours.  Full feeds means he is eating a certain percentage ( I knew this percentage this morning but cannot for the life of me remember it at this moment) of his weight.  So as he grows his feeds will continue to increase.  Right now he weights 2 lbs and 11 oz….I suppose I could do the math and figure out the percentage based on his weight and 22 cc’s….but I’m not going to :)  He is still receiving his feeds over the course of an hour and continues to have some desat’s as he is eating.  We’ll see if they make any changes because of the suspected reflux this week.  Other than that he’s doing great!  Daddy go to hold him this afternoon and I have some pictures and our first video!! The flip video I ordered came in and I’m learning to use it so bear with me!

Miss Karsyn is still struggling.  Her lung situation is still better and is even improving a bit.  However, her brain continues to swell and a brain scan this morning revealed the formation of some cysts on her brain.  This is normal for a bleed the size of Karsyn’s.  What does this mean?  We’re not exactly sure.  We’re still in limbo.  Not sure when they’ll move her to Children’s.  They’re not sure what can be done at this point.  She is still too tiny and too unstable for a shunt.  They could try ventricular taps to relieve some of the pressure, but are still in the process of weighing the pro’s and con’s and seeing if the trauma this might cause her is worth it.  Long story short, our sweet princess is still very fragile and the situation with her brain is very serious.  And unfortunately there isn’t a lot we can do at this moment.  The helpless feeling is so frustrating and of course we just want to fix it all.  We’re praying very hard and are searching the answers and the peace of understanding we know lies somewhere in this situation.  Our comfort comes as we remember God has a plan and has carefully orchestrated every minute of this roller coaster journey for us.  So, having said that I’ll take my rant back and I’ll take the ticket for the ride God has me on……I may not always like it but I’m not in control and I will trust the One who is!  Someone remind me of this statement tomorrow when I’m ranting again!!

Here are a few pictures (and video) of our precious miracles.  

Sweet Sister…one eye open!

Kaden cuddling with daddy today!

Kaden stretching after his play time with daddy.  You can also see his new “sheet” mommy made him! 

Little Kaden and his video debut!!  Listen closely…he has the hiccups!!

Happy Tears

I’m telling you the nurses and doctors at Women’s probably think I’m nuts!  And, they’re probably right!!!

Today I was speaking with the nurse practitioner getting an update on both babies.  We started with Karsyn.  Yesterday afternoon they started giving her her paralytic every 6 hours as opposed to every 4…..and she did well.  Today they began giving her morphine every 6 hours as opposed to 4….and she is doing well.  Her oxygen was at 38% today, and she was looking around when people would assess her and she wasn’t requiring more oxygen when she was doing so…..good news.  They were able to go up on her feeds and she’s still tolerating them well….great news.  As we were talking about her oxygen levels and that she seemed to be doing well she said you know I’m very pleased and if she weren’t on the paralytic we would be talking about  moving her to CPAP.  And this would be when the tears started pouring!  Happy tears!  I know we aren’t moving her to CPAP, and I realize she is still on a paralytic and that she still has a long way to go, but what an amazing turn around from a few days ago when we weren’t able to get her oxygen out of the 80’s.  Such an awesome reminder of what a fighter she is and exactly how amazing the power of prayer is.  I have no doubt this little girl  and her brother are covered in prayer every minute of every day, and we don’t take for granted any of the miraculous improvements we see.  We have awesome prayer warriors out there…..keep those prayers coming!  We still need to see a little poop from the little girl.  She’s had a little tiny bit the other day, but another dirty diaper would be an amazing sign that her bowel’s are working correctly.  I can’t believe I just talked about poop on my blog….swore to myself I would never do it…..but there you have it folks!  I’ve done a lot of things in the last 3 weeks that I never thought I would do!!!

Mr. Kaden has improved as well.  They’ve given him 3 transfusions, but finally have his levels up where they like them.  He only had 1  A and B last night which is a vast improvement from the 8 the night before!  His oxygen saturation is still dropping a bit more than they would like, but they’re thinking it might be a result of reflux, so they might be looking at spreading his feeds out a little more. 

All in all it was a good day with the Brewer twins.  I’m so thankful for these good days and again take none of it for granted!  Here are a few pics from the day…..I did a little redecorating!!!

new signs for the outside of the cribs….just to spice it up a bit!!!

They each got a new blanket that will go in their cribs and be their “sheets” below them when they change their bedding out next time.  For some reason I didn’t take a picture of Kaden’s, but I will when they get it in his bed.  Here’s Miss Karsyn’s sheet!  Don’t look too close Granny…it’s a little rough around the edges but I’m working on it!!

Sweet Kaden sacked out today!! 

Little Sister!  One of the nurses made this cute little hat for Easter so they put it on her this morning!  We will be changing tomorrow to the cute hat Granny made especially for her, but I let it slide for the day because it was cute!!!  

Another day

Today, for the most part, was uneventful….which in my mind is always good!  I had been there for several hours today and had just finished holding Kaden.  I went back in to check on sister and her nurse said “she’s still steady, no changes”.  I said “okay I’m outta here before you guys can catch me to tell me bad news”!

Karsyn is actually doing fairly well.  She is nothing if she’s not a fighter that’s for sure!!  Today she was down to 50% oxygen again, and was, at one point, able to go 5 hours without her paralytic where she usually get’s it every 4.  I know this is a small step, but hey I’ll take what I can get!   Her head has not grown any (according to their daily measurements) since Wednesday so that’s good as well.  She is also tolerating her feeds well!!  They started her slow and have moved her up to 1.8 cc’s every hour.  They give it to her slow just to take it easy on her little tummy.  I pray that we can keep her this steady and hopefully look at moving her to TCH some time next week.  Please keep praying for my sweet baby girl.  She seems to be making some improvements, but has such a long road ahead of her. 

Kaden has been having a few issues.  The last two days he decided to have quite a few A’s and B’s during the night.  This stands for Apnea’s and Brady cardia’s which means his pulse ox dropped and his heart rate dropped.  These are actually normal for preemies, but he’s had quite a few more than he usually does which is why we’re somewhat concerned.  some of  the levels in his blood were a little low so they gave him blood twice today and hope this helps his A’s and B’s.  If not they’ll do a complete sepsis workup tonight to check for another infection.  Please pray that little Kaden will pick it back up and not have to go through the tests for another infection. 

The rollercoaster ride that is the NICU continues on!  It’s so emotionally draining and hard to keep your head up, but seeing those babies and coming home to a sweet little Brady definitely helps!!   Brady was picking out a toy at Target the other day and he looked up at Jeff and I and said “I share vis wiff my brudder and sister”.  Of course I cried right in the middle of target..I know you’re shocked!

Daddy’s Girls

In all of the excitement of the last 3 weeks we’ve definitely let something slip by un mentioned!! 

Jeff’s soccer team (or daddy’s girls as brady calls them!)  is having a great season.  They finished 2nd place in district and had their first playoff game tuesday night.  They beat Ft. Bend Travis in a very exciting game.  It’s probably a good thing I just had surgery because there were definitely a few times I wanted to jump the railing and let the referee’s have it (and maybe even tackle a few of the girls from the other team…but we won’t go there!).  Daddy even went out on the field a few times to “explain his frustrations” to the refs.  If you know Jeff at all you know this is HUGE!!  Jeff NEVER get’s mad, but these guys were horrible!  Anyway……they continue their play-off run with LaPorte this Friday. 

We’re so proud of daddy and all that he’s accomplished in his first year as a head coach!  Good Luck Girls!!!! 

3 weeks

I cannot believe it has been 3 weeks since our little miracles joined our lives.  Time flies when you’re living in the NICU!! 

Little Miss Priss is still holding true to form!  They did a second spinal tap last night and unfortunately were still unable to take out any of the extra fluid.  At this point the doctors think she is still too unstable to transfer her to Texas Children’s.  Yesterday they tried to go down on her dose of the paralytic and her morphine.  My little princess didn’t like this in the slightest!  After about an hour on her new does they were back up at over 80% oxygen so they decided she wasn’t ready.  So they increased her dose again and are working to get her back down on her oxygen.  Until they are able to lighten up on the paralytic they are reluctant to move her.  SO, the neurologist is coming over tonight to take a closer look at her ultrasounds (they did another one this morning) and assess exactly how bad the swelling is and whether or not they can hold off transferring her because of her fragile state.  HOWEVER, they did begin feeding her today at Noon.  This is great news as nutrition obviously a key part of growing and healing.  So hopefully our little angel tolerates the feeds well and can continue to receive this extra nutrition!  Here are a few pics of the pretty princess.  When I got there this morning and lifted the cover her eyes were WIDE open staring right at me.  Of course I cried!!  She had been sporadically opening an eye here and there, but had yet to give us the full view until to today!

sweet little eyes!

holding mommy’s hand! 

 

Mr. Kaden is still trucking along.  They’ve increased his feeds back to 12 cc’s, and he is still infection free.  They plan to reinsert his picc line tomorrow sometime.  They repeated his head ultrasound this morning to check on the ventricles they were concerned about on Friday.  The ventricles seem to have shrunk…….good new!!  We’re so proud of how well our little slugger is doing!  I was able to grab a few cute pictures today right after I held him!

Hi mom!

give me 5!!!

he was all stretched out with his little legs crossed and I thought it was too cute!!

 

Please keep them both in your prayers.  That Kaden keep improving as he has been - that his ventricles continue to shrink, and that he continue to tolerate his feeds.  Please pray that Karsyn tolerates her feeds and that she continues to fight as she has been for the past 3 weeks.  Seeing those little eyes stare at me today reminded me of what an amazing God we serve and that he is capable of the impossible. 

And a cool little story…..the prayer I posted on the blog yesterday came from a site called threads of love.  I found it, as I mentioned, while searching for specific verses and prayers.  Today as we were getting ready to leave the NICU Kaden’s  nurse handed me a package and said this came for you today.  It’s return address was from Threads of Love.  Someone had anonymously sent us little blankets, hats and animals for each baby from this organization.  Enclosed with each animal was the very prayer I posted yesterday.  How amazing is our God???  Of course I cried again!!!!  Are we seeing a trend here?!?!

March of Dimes – Team Brewer

My sweet friend Bethany has organized a “team brewer” for the march of dimes walk on April 25, 2010.  .  Funds raised in March for Babies support research and programs that help moms have full-term pregnancies and babies begin healthy lives. And they will be used to bring comfort and information to families with a baby in newborn intensive care.  Obviously this cause is very close to our heart right now, and Jeff and I (and Brady) are very excited to take part in this walk!! 

Bethany has a special page set up for anyone that wishes to join Team Brewer.  Just click on this link and it will tell you how to sign up  http://www.marchforbabies.org/team/t1386263

We would love to see you guys on the 25th!  Thank you Bethany for all your hard work,  we can’t wait to support this great cause!!!!

A new prayer

I was searching the  internet yesterday for specific prayers and quotes that would apply to our situation right now.  I found a site that had this specific prayer for premature babies and I thought it was very fitting. Jesus, tender shepherd hear me.

Bless and keep your child today.

Though my arms cannot enfold him(her),

May your love guard all the way.

Jesus, tender shepherd hear me.

For my tiny child today.

You have power to deliver.

You will lead us all the way.

Jesus tender shepherd hear me.

I do trust my child to thee.

I do not understand the trial,

But your love does comfort me

I love the part about our arms not being able to enfold them.  I think that is one of the hardest parts of all of this.  Yes we get to hold Kaden once a day, but as a mom – or parent – your instinct when your child is hurting is to scoop them up and hold them until they’re okay.  We obviously can’t do this and it, along  with a lot of things right now, kills me.  We know God has a great plan, and we’re praying every day for this portion of the storm to pass quickly so we can hold them in our arms and make sure they  know how much we love them. 

Yesterday was a decent day.  Kaden is still doing well and they’re plugging away at his infection.  They hope to be able to insert another PICC line by Friday.  They increased his feeds to 9 cc’s last night and this morning when we called he weighed 2 lbs 7 oz. 

Karsyn’s little head measured slightly bigger again yesterday.  Last night they did a lumbar puncture (spinal tap) to try to relieve some fluid and they weren’t able to get anything.  They plan to try again this morning so please pray they are able to get some of that fluid out.  If  they can’t they will have to place a reservoir in her head and this has to be done at Texas Childrens so she will have to be transferred.  Obviously we want the best care possible for her and want her to have what she needs, but splitting them up into two different NICU’s wouldn’t be ideal.  Again I know God has a plan so we’ll sit back, wait and listen. 

Hopefully today will bring good news about decreased swelling in Karsyn’s brain!

It’s the little things!

You know in these situations it’s my firm belief that you have to find humor in the little things.  Maybe that’s not right, but it helps me get through difficult situations!  Yesterday as they were getting Kaden ready for Jeff to hold him I looked down and his diaper had slipped down and you could see his little bum crack!  I’m not sure why this struck me as so funny, but I just HAD to have a picture!! 

Is this not the cutest little bottom you’ve ever seen????

Kaden is doing fairly well.  He does have an infection and it’s moved into his bloodstream so they had to remove his PICC line yesterday.  They will treat him with antibiotics and after 3 negative “tests” they will replace his PICC line.  They had temporarily stopped his feeds when he developed his infection, but yesterday they started them back…gradually with 3 cc’s and today he’s up to 6 cc’s and seems to be pretty happy to have his food back!!  Daddy go to hold Kaden again yesterday.  This first picture will seem a little cruel, but as they were placing him in Jeff’s arms he began to cry a little.  This was the first time we’d heard him cry.  Again it’s the little things!!

daddy and his little man!

sweet little eyes! 

As I mentioned earlier last week, they were measuring Karsyn’s head every day to see if there was any significant growth to check for hydrocephalus.  Unfortunately this morning her measurements were a little troubling.  We’re waiting to hear from the neurologist, but they’re fairly certain they will start spinal taps to try to alleviate some of this fluid.  Please pray that these taps work as the alternative to this is for them to insert a cranial reservoir.  They actually measured Kaden’s today as well, and were  a little troubled by it as well, however the Dr. feels it was simply a bad measurement and is going to re measure this afternoon.  Please pray for both little nuggets, pray that Kaden’s infection is eliminated and that his measurements come back accurate.  Pray that the pressure in Karsyn’s little brain can be easily relieved.   

The little princess today

Happy Birthday Mommy!

Karsyn and Kaden must have known yesterday was my birthday because they decided to have a pretty low key day! 

Actually Mr. Kaden decided Karsyn was getting too much attention from the doctors and got a little jealous!  The nurse practitioner called us Thursday night about 10pm to tell us that Kaden’s color looked off and some of his levels were suspicious and they thought he might have an infection of some kind.  So they collected blood, urine and spinal fluid and began running cultures.  These cultures can take up to 72 hours to come back positive or negative, but by 5 pm yesterday afternoon they called to let us know that he did in fact have an infection in his picc line.  As weird as it sounds, this is actually good.  An infection was a much happier explanation for some of his symptoms and actually explained a small change in his head ultrasound from last week.  So as much as we don’t want him to have an infection, we were glad it wasn’t something far more serious. 

Karsyn was actually holding pretty steady yesterday.  They were able to come down on some of her ventilator settings, and seem to have found a position she likes to keep her lungs where they need to be.  We’ll keep our fingers crossed that the same holds true for today!

We’re about to head up to the hospital for the morning, and are then going to head to the Cole’s house for an afternoon birthday celebration!  My 32nd birthday was definitely different than any other birthday I’ve ever had, and obviously not ALL of my birthday wishes came true, but I’m so thankful for all my friends and family and to have been able to spend my birthday with my 3 precious children.  

Strawberries!

Not much new to report today.  Kaden is still doing well on CPAP and they went up on his feeds again this afternoon.  If he tolerates these feedings well he will be up to 15 cc’s which is 1/2 an ounce every 3 hours.  He now weighs 2 lbs and 4 oz.  Karsyn is still struggling.  Her right lung was deflated this morning so they moved her around and positioned her to try to help inflate the lung again.  With positioning the right lunch inflated, but the left lung deflated………..UGH.  We’re having a hard time finding a happy medium for miss Karsyn right now.  Please pray for the doctors as they try to figure things out, and please pray that Karsyn remain comfortable.  And please pray for strength for Jeff and I.  It’s pretty draining to sit at her bedside day after day and watch her struggle.  We love them both so much and are so proud of the feisty spirit and strong will they both possess.  God never gives you more than you can handle right?

After our morning/afternoon at the hospital we decided to take Brady to pick strawberries.  This is our second year to do it and Brady was definitely more into it this year!!  He had a blast!  And can I just say that I am so thankful for this little boy.  His innocence and sweet (most of the time) spirit has been such a bright spot for Jeff and I the past two weeks.  He manages to bring smiles and genuine laughter at times when I never thought I’d smile again!  It’s amazing how and who God uses to minister to you in times of need. 

we have our buckets and we’re ready to go!!

looking for the perfect strawberry

ahhh haa…there it is!

let’s find some more! 

my sweet friends Jana and Erin sent Brady a big brother package today.  He had so much fun finger painting with his color wonder paints!  Please take note of the Pez dispenser that he never let out of his hand!!!

I need some orange now

What do you do when your hands have paint all over them and you want a pez?  Well, you pull the bunny’s ears back and….

pop it into your mouth….of course!!!

Thanks Erin and Jana, Brady loved his presents! You guys are awesome!

And because I feel as if I haven’t said it enough, we are so thankful for all the support and prayers pouring in from everywhere.  From the emails, to the blog comments, to the letters in the mail, to the pastors and friends calling and coming by the hospital to pray for and with us.  We could not do this without  the amazing people God has placed in our midst. 

2 weeks

Happy 2 week birthday to our little angels!

We’ll start with Kaden today.  He is still tolerating his feeds well.  He’s up to 12 cc’s every 3 hours!  About 2:15 this afternoon they decided to take out his ventilator and move him to CPAP.  CPAP  gives oxygen to the baby, but requires them to do the actual breathing on their own.  So far Kaden is doing great.  He was handling the change well and doing good taking the breaths on his own!  We’re so proud of him and pray that he continues to plug along!!  Here are a few pics of the little man on his CPAP!  The tube you’re seeing in his mouth is just the feeding tube.  The ventilator tube is gone!

look at his cute little hat!!  Green for St Paddy’s day!!  The hat helps to hold down the CPAP wires!

Look at that belly!!! 

Karsyn’s turn!  Little Miss Priss had a bit of a rough day.  They had to move her oxygen levels up again.  They are thinking maybe they weaned her down too quickly yesterday and that now she’s a little tired.  So, they’ve brought her back up and are going to try to take it a bit slower.  They did another cranial ultra sound today and the results were still not great.  We’re still looking at a bilateral grade 4 IVH (intra ventricular hemorrhage).  The neurologist came over from TCH today and called this afternoon after looking over her scans.   He said the right side of her brain is much worse than the left side.  As of right now there is very little hydrocephalus (water retention/swelling on the brain) so he doesn’t feel they need to do any of the spinal taps to relieve pressure yet.  They will measure her head every day (to check for swelling), and repeat the cranial scans every week to monitor the fluid retention and make decisions on spinal taps and other treatment options as symptoms present themselves.   The right side of the brain (where her bleed is the worst) controls the left side of the body.  So we will be looking at weakness on the left side of her body.  Obviously the extent of this weakness will more evident as time moves on.   So let’s keep those prayers coming.  We’re obviously very concerned about her lungs and her breathing issues.  As they were assessing her today I was able to get a picture with the top to her crib up…nice not to have to compete with the glare on the glass!!

Our little princess!! 

Phew

Finally a day with no bad news!  Miss Karsyn is responding very well to the changes made yesterday.  When we left yesterday her oxygen was at 99%, by 6:00 when we called to check she was down to 70%, and by this morning she was at 50%!  This is definitely a welcomed improvement.  Her heart rate has always been high…in the 180’s and today she was in the 150’s!  The doctor said her chest xray this morning showed that the inflation in her lungs had gone down and was alleviating the pressure on her heart.  Needless to say Jeff and I were thrilled to hear something positive about sister!  Now, obviously this is all taking place with her pretty much out of the equation (knocked out), so hopefully in the next few days they can get her oxygen down a little more and will be able to slowly bring her back to reality.  So our main concern/prayer is that as she’s brought back into the equation that she will continue to respond well. 

Kaden is still trucking along.  They’ve increased his feeds again to 12 cc’s and will add fortifier to my milk tomorrow.  The fortifier adds more protein and calcium (and some other things I can’t remember right now) that preemies need to help them grow.   They did a does of diuretics last night and will do 3 more doses over the next 3 days.  Their hope is to be able to try CPAP again on Friday or Saturday.  I was able to hold Kaden Kangaroo style today.  Skin to skin aka Kangaroo holding is the best way to hold preemies as it keeps them warm and they love the skin to skin contact.  I held him for almost an hour and loved every minute of it!!

Look at that tiny little head!!

Happy mommy! 

a quick pic before they closed the top again!!

and sweet sister still sacked out! 

The neurosurgeon from TCH is supposed to come over tomorrow to take a look at Karsyn’s cranial ultrasound and to discuss what course of action to take against her brain bleed.  Please keep her in your prayers. 

Afternoon with Brady

Jeff and I have been trying really hard to make sure Brady still get’s plenty of attention and is affected as little as possible by everything that’s going on.  So, yesterday we decided to take him to play putt putt!  He had a blast, and Jeff and I enjoyed our afternoon with our little man!

first you hit the ball….

then you chase it down the green!

Then you hit it  “IN THE HOLE”  which is what Brady yelled every time the ball went in! 

Daddy and B talking strategy!

The putt putt place has a ton of other activities.  Daddy was very fired up about the bumper boats!!!

Cute boys!  You’d never know by those innocent faces that they were chasing mommy around the edge trying to get her wet!

and of course it wouldn’t be a complete trip without a ride on a train!!

Happy Daddy

Daddy got to hold Kaden today!!!  Needless to say he was a very happy camper!!  Kaden is doing well.  His sodium levels are up so they’re going to do the diuretic this afternoon and hopefully get to make some changes on some of his vent settings and start talking about moving to CPAP in the next few days!  We will also get to start skin to skin kangaroo holding tomorrow!!  Mommy and Daddy are very proud of you Kaden!!

daddy and his little man!

peek a boo daddy!!

3 of 5 of the brewer bunch!!

Little Miss Karsyn is still doing what little miss karsyn does best!!  Making mommy and daddy worry!!  They ruled out an infection in her lungs, and have decided that her lungs and her heart are fighting against each other.  Her lungs are expanding and filling with fluid and pressing against her heart.  SO, they’re going to give her a higher dose of the paralytic to completely calm her down and as the dr. put it today “take her out of the equation so we can do some of the work for her”.  Their hope is that with her more sedated they’ll be able to control her breathing a little more, and even out her oxygen a little to alleviate some of the pressure on her heart…therefore fixing some of her blood pressure issues.  As they are able to do this they will slowly “bring her back into the picture” and let her take over some of the work.   The good thing about this is that little girl will be comfortable and won’t be struggling against all her machines.  Please keep her, and the doctors and nurses doing the work for her in your prayers.

The little princess!

In other news mommy decided to get crafty last night!!  I needed to make their space more personal.  I know that sounds trivial, but I can do so little to help these guys.  Making them things makes me feel better!!!  SO, I decided to make them a little blanket.  I’m fairly certain my grandmother just fell out of her chair at the thought of me making a blanket!! Don’t worry Granny, Nana has pictures to prove it!!!

They’re not going to keep them very warm, but they were the perfect thing to decorate the top of their beds!!

Karsyns crib!!  Much better don’t you think?!?!

Mommy telling Karsyn all about her new digs!!

Kaden’s  crib!

not sure he cared as much that his crib was decorated!!